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Friday, August 31, 2012

I think it's so ironic that my last post was about my good ole friend poly....you remember, Poly Myo Sitis. ;)
We had our fall GMOM sale last weekend. A new, sweet friend texted me just before it started to tell me she was praying for me as she knew it was going to be a tiresome time! Well, I barely made it through the sale. If you ask my co-coordinator, I probably wasn't her favorite person come Saturday afternoon. My energy had plummeted, I was having crazy heart palpitations, and I just felt like poo in general. After a quick trip to urgent care and a fun little EKG, I was told to go home, rest, drink lots of water, and call my dr Monday.  Monday was not fun! My legs ached pretty badly. The dr had me come in for a check and some bloodwork. It turned out I had shingles! I sorta thought those were for my 80 year old friends....anyway. My levels had also risen pretty high and pretty fast which caused the severe leg pain. Apparently shingles make you feel like you got hit by a bus....or a train....something really big. The elevated ck levels made it hard to walk. So in turn we've had the "Jenn gone hermit" special this week. I have to say its been nice to be home. Nice to have more quiet time. Even nice to not put on a stitch of make up.  
I am SO thankful for a hubby who could come home early and also has a schedule that allowed him to rest with me help me for a few days. I'm thankful for 4 blessings who do their best to help their poor achy mama. I'm thankful for parents who let the kids play at their house and take them on field trips because I just.couldnt.do.it. I'm thankful for friends who pray for me and check on me and bring me Starbucks and try so hard to do for me even though I am self-admittingly a bad receiver of said help! I am feeling so much better than I was at the start of this week! PTL!
During this week I was reminded on numerous occasions that my reaction to my situation is a choice. I chose to embrace it.
1 Thessalonians 5:16-18 says "Rejoice always; pray without ceasing; in everything give thanks; for this is God's will for you in Christ Jesus."
I'm sure I've shared this verse before but it just speaks volumes to me. On good weeks and bad ;).

Wednesday, August 22, 2012

poly-myo-si-tis

Many of you reading this are aware of my autoimmune disease, polymyositis.  I haven't talked about it in a while so I thought I would give an update.  We have been back and forth on what meds "help" and what not.  I am currently taking prednisone and methotrexate.  I haven't had a rituxin infusion since last September.  My levels at last check (which was about a month ago) were at a record LOW!  As a matter of fact, they were 2 away from being in the normal range.  Oddly enough about 2 weeks ago, I began having some pain.  My hands and wrists are the most bothersome.  Probably because they are being used the most.  The muscles in the backs of my legs have also been sore.  Sometimes to the touch.  Prayers are appreciated for the pain to stop!  I have to say I am thankful this disease is not affecting me in many of the ways it has other people.  It's not fun, that's for sure but, I am doing my best to focus on the positive.

Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things. Philippians 4:8

Saturday, August 11, 2012

After we lost Jordan, some sweet friends of mine gave me a butterfly bush that we planted in our front yard.  It has grown and is so beautiful!  There are always lots of butterflies around it.  Daddy-O saw this one while mowing the other day and stopped to grab the camera.  Isn't it pretty?



Wednesday, August 8, 2012

Photo shoot

When I saw that Adam Mowery Photography was offering "surfer" style  photo sessions, I knew my kids needed to have them done!  We were MORE than pleased!  I love every single one!  I picked just a few of my favorites to share...but that was super hard!  I have to say, Joss was a hard one to crack!  She did NOT want to smile!  The last picture you see was full on bribery!  Candy for a sweet smile!  Of course she obliged ;).





Monday, August 6, 2012

Our famous pencil cake



The year that Jax started Kindergarten, we made a pencil cake similar to this one to kick off our year.  It's fun, and it tastes good, so we have kept it up every year!